1 Month

Everly is 1 month old today and weighs in at a whopping 9lbs and 20.5 inches!  When I realized the possible extend of her NICU stay, i toted all her newborn clothes to the hospital so she could get her use out of them. The nurses are having fun dressing up my baby doll in her pink, polka dots, and bows.  Here are some 1 month old pictures and an updated status on Everly.

• Everly will be on the insulin regulating medicine, Diazoxide, for up to 1 year.  We will check her glucose levels at home. The only side effect to this medicine is "unsightly amounts" of body hair.  Whoa!  Matt and I had a good laugh about that, but we may not be laughing in a few months when our baby looks more like a little monkey.  
• The second genetic test, micro array, came back normal!  We are so happy to finally know that our baby girl doesn't have a genetic disorder.  
• She was put on Prilosec to control her reflux.  Since being on the medicine, Everly has been a different baby. She is much happier and has been able to catch up on her sleep.  
• Tomorrow she will have an Upper GI.
• Everly continues to have a difficult time eating and no progress has been made with the bottle.  If the upper GI looks good, Everly will be scheduled to have g (gastrointestinal) tube put in place.  This will allow us to feed her directly to the stomach. We will continue to practice bottle feeding at home. In the meantime, the g tube allows her to get full feedings, proper nutrition and sugars for her growth and development.  This will take the stress out of feedings for us.